Monday, March 24, 2014

It's Official


It’s official…

 We have three really great sets of parents, amazing brothers and sisters, loyal & caring friends and very supportive and loving extended families.

 Chris’s second living donor (R—I am not using his full name so as to protect his identity out of respect for his privacy) has been officially disqualified by the Mayo Clinic. We are so very blessed and grateful that he came forward at all. R is a close personal friend of Chris’s…in fact you could say that they grew up together. They met in HS and have continued a 20yr+ friendship. R came forward after Chris’s brother Matt was disqualified as a donor back in March of last year.

It was a very long testing process but all signs pointed to a very positive verdict from the transplant committee. The only test that R had trouble with was the blood pressure test, some days it was up and other days it was down. For those of you unfamiliar with the testing process let me take a moment to give you the run down:

First you clear time in your very busy schedule to fly to Phoenix, Arizona. Then you submit yourself to five pass or fail days of testing, blood tests, fitness tests, stress tests, psychological tests, ultra sounds and the dreaded ‘Dave Barry’ colonoscopy (http://www.freerepublic.com/focus/news/1975542/posts). If you make it to the fifth day your case is put in queue for the transplant team to vote yes or no on. You wait a minimum of two weeks for your case to be heard and then each doctor that tested/evaluated you has a chance to speak and vote whether or not they feel you can give your kidney to someone in need.

Well R’s case was heard and the team voted and inconclusive, ‘not now’. They contacted R and asked him to retest again in 3months time and in order to get the green light this time he would have to have ‘perfect’ blood pressure tests. Perfect. He was instructed that he could only lower his BP through diet and exercise and that BP meds were out of the question.  Now R is in very good physical condition but…he has a high stress job. Very high stress. Three months went by and R was exercising more and eating very well, no salt, no French fries and limited red meat. Alas his BP was still on the high side by the Mayo clinic standards. R decided not to retest at the 3 month mark but at the 4 month mark. Mayo Clinic said it was still too high but they wanted him to test for 10 days in a row and they would use the 5 best results. Long story short, R was disqualified last week due to high BP.

What is next? Or should I say who is next? Well….that would be me. I cannot be a direct donor b/c our blood types do not match, I can however apply to be in the ‘paired donor program’. This means that I will donate one of my kidney’s to another patient in need whose loved one will donate one of their Kidney’s to my loved one in need. The Patient Service Coordinator told me that b/c my blood type is the most popular we would not really be increasing our chances by that much but I still have to try.

Mr. Gushard and I made a promise to each other back when he was first listed with Mayo. Our agreement was that we were to start a family first and then once I had given birth to our son or daughter I would be allowed to ‘enlist’ if you will. After trying for a year to get pregnant we went to the best fertility clinic in Las Vegas. Diagnosis: Infertile. Treatment: In Vitro Fertilization. Success Rate: 70%. Cost: $36K. Percentage Covered by Insurance: 0%. Chances of getting pregnant naturally >1%.  

Plan B: Adoption. Chances of Adoption with one parent diagnosed as ‘terminally ill’: 0%.  

Plan C: Be happy and blessed with what God has given us and wait to adopt until after the transplant.  

After seeing two healthy men disqualified for one reason or another I have decided to start my 120 day challenge before applying to the ‘paired donor program’.

Challenge:

I will eat clean: Organic, No GMO, Gluten Free, Dairy Free, Hormone Free and locally sourced foods

I will exercise more intensely and more often

I will lower my stress level

I will live each day to the fullest and appreciate the little things

I will let those I love know it each and every day

I will maintain my faith in God as my one and true savior

And

I will believe that good things happen to good people

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